See also attached poster file. We meet weekly on zoom as a network to discuss various topics relevant to the global state of cell and gene therapy. These include patient perspectives, advocacy initiatives, government policies and regulatory status, new science and clinical research and perspectives, commercial investment and development.
It all started with a phone call during the SARS CoV2 pandemic in 2020. Dr. Cissy Kityo-Mutuluuza had heard about gene therapy for HIV and sickle cell disease and wanted access for Ugandans. After many phone calls and conversations with commercial developers who just kept saying “we need 10-15 more years”, she started researching gene therapy access online.She found a TEDx talk by Dr. Jennifer Adair on YouTube called “Bringing Gene Therapy to the Table”, about a device which could replace existing multimillion dollar brick and mortar clean room infrastructure to enable gene therapies in naïve clinics. Jen shared her frustrations with the limited availability of this equipment in resource constrained settings after commercialization.
It all started with a phone call during the SARS CoV2 pandemic in 2020. Dr. Cissy Kityo-Mutuluuza had heard about gene therapy for HIV and sickle cell disease and wanted access for Ugandans. After many phone calls and conversations with commercial developers who just kept saying “we need 10-15 more years”, she started researching gene therapy access online.She found a TEDx talk by Dr. Jennifer Adair on YouTube called “Bringing Gene Therapy to the Table”, about a device which could replace existing multimillion dollar brick and mortar clean room infrastructure to enable gene therapies in naïve clinics. Jen shared her frustrations with the limited availability of this equipment in resource constrained settings after commercialization.
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